Care Opinion

Text size

Theme

Language

Videos in BSL or ISL
Help with language translation
Help with reading or listening

Continence Products

Posted By Fifi_1979

"Continence Products"

About: Children's Specialist Health Services Children's Specialist Health Services / Community Paediatrics

(as a parent/guardian),

My son is 8 years old and has sacral agenesis, he is a full time wheelchair user and is fiercely independent. He has neurogenic bladder and bowel because of his sacral agenesis. He can be independent with changing with the correct continence products but I am having to buy them because they are not on the formulary. I have been told he can’t have pull ups or thicker pads during the night because of landfill and that night time products are not encouraged! He is not struggling to toilet train, he will be incontinent his whole life. I don’t think it is fair that he is not assessed as an individual. If I was not buying the products (which come from the same company the NHS use) he would have his independence taken away from him. 

More about:
Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Team Leader, North Lanarkshire Health & Social Care Partnership 2 weeks ago
North Lanarkshire Health & Social Care Partnership

Submitted on 13/11/2025 at 10:11
Published on Care Opinion at 10:41

Good morning Fifi_1979.

Thank you for sharing your concerns. I completely understand how important it is for your child to have the right containment product. The product you’ve requested isn’t on our current formulary, which means we’re unable to supply it directly. However, we do have alternative options that meet clinical standards and are designed to provide comfort and protection.

I would recommend getting in touch with your Childs Nurse for a continence re-assessment, there are alternative products that could be trialed such as thicker pads you had mentioned. As your child is 8 years old, he is not known to Adult Continence Service.

I hope between yourself and your child's nurse, you can come to a resolution that works well for your son.

Response from Julie Arthur, Governance Manager, Specialist Childrens Health Services Unit, North Lanarkshire Health & Social Care Partnership 2 weeks ago
Julie Arthur
Governance Manager, Specialist Childrens Health Services Unit,
North Lanarkshire Health & Social Care Partnership

Submitted on 13/11/2025 at 13:04
Published on Care Opinion at 13:04

Good afternoon Fifi_1979

I'm really sorry to read of your concerns for your son and that the products you feel are best suited for him to maintain his independence are not available to him from NHS directly.

Could I please ask you to make contact with Seonaid Robertson, Team Leader for the Intergrated Childrens Community Nursing team on 07866790391 or ICCNSTL@lanarkshire.scot.nhs.uk. Seonaid would really like to discuss this with you, to see if there are any other options available or any support or advice the team can provide.

Thank you for getting in touch.

Kind regards

Julie Arthur

Governance Support Manager
Specialist Childrens Health Services Unit

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k